Paige got transferred to the Alberta Children's Hospital on March 9 after her MRI at the Foothill's Hospital.
I was able to escape the Foothills myself on March 10. I arrived at the Children's in perfect time to try and nurse her again. I think she just got a whiff of me and knew that I was exactly what she wanted. She took to me no problem. After feeding her we did some skin to skin and the Nurse commented that she hadn't seen Paige that relaxed since she had gotten there. Not that she had been doing bad but I just relaxed her that much more.
I pretty much just spent the whole day holding her and letting Dan pass me my pain meds. That was that day.
Over the course of the days we were there they did a few tests with her. They did an echo on her because they thought there was a hear murmur but it turned out to be nothing.
Ultrasound on her abdomen to check out her internal organs. Everything was normal and good.
They did a hearing test which her right ear failed the first time and then the second time they did the test right before we got home she passed. Yippee!
Eye test. We're not entirely sure whats going on there as she is so young. But the Opthamologist said Paige's Optic nerve is more on the white end and they are normally pink. So she could have eye issues when she grows older or she could be fine. (story of our life right now) Really we won't know till she starts crawling/walking and if shes clumsy.
EEG- passed it. No seizure activity as of yet. Lets hope it stays that way.
This test they did while we were gone eating lunch. When we came back up her head was all wrapped up and there were wires and a camera on her and everything. It was quite scary until the nurse reassured me she was fine and this was just the EEG.
The NICU surprised us and let us go On March 14. We didn't tell family. We just surprised them by showing up at home! Needless to say I think everyone was quite pleased.
| giving her her first bath before we went home. She loved it. |
| Going home outfit she crapped out of. of course. |
She's home and were doing great! We just have to keep measuring her head and calling in the measurements once a week so we can continue monitoring her head growth. At some point she will need a surgery to help with the excess fluid. But right now she is managing just fine on her own.
Her mengecele is also doing just fine. Thats that little bump you see right there. The Doc's figure it'll either drain on its own when she has a shunt and if it doesn't then they'll get plastic surgeons involved and they will fix it up when shes a bit older.
We had to run up to Calgary on the 22 because in the week we'd been home from the NICU her head had grown 2.5cm (TOO MUCH!) But the surgeon was okay with it because she was still acting like a typical newborn, eating, sleeping, no vomitting or irritability and her fontenells were still soft like. He said we had just "tripped" a warning wire but we still are good.
So we see a pediatrician down here on Tuesday and go back to Calgary April 5 for another meet with the surgeon. We're getting very familiar with the highway to Calgary.
The boys are absolutely in love with her! They always wanna hold her or see her or be near her! They are also very gentle with her. It warms my heart that she is so protected by her brothers!
Sean tells me to watch her as he runs out of the room. It's very sweet. Evan calls her his "tiny one" or "pincess paige" its so sweet.
The first thing Max did when he met her was grab her pink finger and skadoosh her. But he also loves holding her and kissing her.
| My herd. I love them |
Cute how protective her brothers are already. Good to read an update. We have been wondering how things were going.
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